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England's Care.data Fiasco: Open Government Data Done Wrong

BY Wendy M. Grossman | Monday, April 21 2014

Screengrab from Paul Bernal's parody of the "Downfall" video

Given the power to open up access to public health data in legislation passed in 2012, the governing health authority ordered care.data into being at the end of 2013, and distributed information leaflets in January 2014. Unfortunately, the process has been confused by conflicting promises of protecting personal information and expanding commercial access. The resulting furor, which has seen the program delayed for six months for a rethink, has seriously damaged public trust in how the English National Health Service (NHS) intends to manage the country's medical data. Wendy M. Grossman explains what went wrong. Read More